Especially this time of year our lives feel hurried and harried. Do we have everything done for the holidays? Do we have enough money? At other times it may feel like youāre snoring your way through. Not getting enough done.
For the four holiday seasons before Mikeās death, I was grateful knowing that he was there with us. Especially the last one. He had a feeding tube for a little over two years before that. That summer it had been moved four or five different times because his body wouldnāt heal around it. That area would grow larger, and he wouldnāt use it because it hurt. Add to that that the incision spot also wouldnāt heal, and they would send him home with a wound vac and our summer had been very stressful.
During that time, he wanted to go fishing with a buddy in northern Nebraska. This was not a trip he could make himself at this point. I had a Touched By A Horse Core early that week and couldnāt take him. So, I made an offer. I would help him drive up on Friday, he would have one day to fish with his buddy, and we would return on Sunday. This was my gift to him. It was the last big fishing trip he took.
Also, at this time we were working to get his esophagus dilated enough so he could eat again. We were working with a nutritionist to be able to get him enough calories to be able to stop using the feeding tube. He was having dilations about every three weeks so his food wouldnāt get caught and he could eat.
On December 22 we both had appointments at KU Med Center. I had surgical follow-up where I was told that the cancer had leaked into my lymph nodes. This jumped me two stages from where they thought I was and meant aggressive chemotherapy. After my visit, we went to see Mikeās surgeon about his feeding tube. At that point, Mike hadnāt been using it and hadnāt been taking much by mouth as it burned too much and asked the doctor to take it out. So, he did, right then. Mikeās next appointment in a few weeks was another dilation and that surgeon wouldnāt work on him because he was malnourished and dehydrated. He was admitted and put on IV nutrition.
Our last six and a half months together were spent with me having chemo treatments, him on IV nutrition, and frequent trips to KU Med Center for dilations and visits with the nutritionist. We also managed to fit in many of Johnās high school activities. Not the most peaceful of existences. It was what was needed right then, and I have no regrets.
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